Tuesday, 15 August 2017

UPA - Preferred Supplier Criteria

All Criteria

Quality

·         Extraction Methods
·         Approved Sources
·         Test results
o   Batch Test Results
o   3rd Party Labs/Qualified Professional in house
o   Consistency
o   UPA Independent Test/Client feedback?

Business Integrity

·         Seed to Product/End to End Transparency
·         Pricing
·         Competitive behaviour
·         Legality
o   Content
o   (NO) Medical Information
·         Appropriate product and Employment insurance
·         Record keeping
·         Processes Experience

Customer Service

·         Labelling
o   Give accurate information
o   Supplementary information available
·         Product Supply
·         Product Innovation/Catalogue
·         Delivery
·         Feedback
·         Complaints/Query handling

Values

·         Future of the industry
·         Social Responsibility
·         Promoting responsible consumption
·         Friendly

·         Compassion for patients

Thursday, 20 July 2017

Product Suppliers - Intro

Dear Sir(s),

The United Patients Alliance formed in June 2014 to offer help and support to medical cannabis patients and to lobby the UK government and campaign for legal access to cannabis therapeutics.

With only the passion, hard work and determination of medical cannabis patients volunteering their strength, passion and time to help every person in the UK who could benefit from a change in the law, we have made an impressive amount of progress:

Headline Progress made to date:
(More News Here)
  • June 2014 - Launched with support from Caroline Lucas MP and Prof David Nutt
  • Sep 2016 - APPG Inquiry into Medicinal Cannabis
  • April 2017 - Announce Norman Baker as a patron
  • September 2017 - Many more amazing announcements and appointments (TBC)


We have made some impressive progress thus far, but didn't do all of this to stop now! As the goal gets closer, the stakes get higher and to get the support we need, we need to raise funds so that we can really get thing moving.

We are now in a good position to find a sustainable business model so that we can take our organisation and our campaigning to the next level.

To that end, we are building a small, curated catalogue of cannabis consumer products which we are happy to recommend to patients and their carers. Our selection will be chosen specifically for the quality of the products, so that health conscious consumers, medical cannabis patients and their carers can purchase ethically produced goods of the highest grade.

For example, patients who consume cannabis for arthritis may find grinders with handles more comfortable; rollers that can be operated with one hand; vaporisers that are easy to use, store plenty, and are easy to draw your medicine from and will help consumers move away from smoking. The UPA will NOT be supporting or selling products related to tobacco or smoking.

That paints a picture for you, but please paint your own. UPA support and represent patients and if we are to be successful in our goals, we are going to need your help. We know and can communicate with many patients, our social media interaction numbers are growing every day, and patients love to give feedback on products! You know your products. So rather than us scouring through your product range we invite you to present a few that you think would be appropriate.


We are incorporating as a Charity, so if you would like to donate something to help us achieve, legal access to cannabis therapeutics in the UK, through sponsoring an event or donating giveaways, raffle prizes or any other resources you may have to offer, you would be most welcome.

We would also like to invite you to attend our AGM in Birmingham on Saturday September 30th perhaps with a small stand demonstrating and selling products you feel would be appropriate in return for which you can offer to help fund or sponsor the event and/or offer raffle prizes etc - open to all ideas?


If you are interested in engaging further, either regarding the AGM or a future working partnership, please get in touch as soon as possible.


Yours Faithfully




Friday, 28 April 2017

UPA - Cannawell CBD Products

CBD Rich Hemp Oil

United Patients Alliance have been aware for a long time now, that there are many thousands of people in the UK who feel that supplementing their intake of cannabinoids, especially with maximised proportions of CBD is beneficial for their health and well-being.

There are an ever increasing array of products appearing, most with very few quality or legality checks and balances. We get asked frequently for advice on product and vendor trust and quality.  

http://imcpc.org/warning-for-consumers-of-cbd-and-cannabis-oils-sold-on-the-eu-market/

Recently, it was brought to the attention the MHRA that some vendors in this rapidly growing and entirely unregulated industry were making medical claims for their product(s) and issued a statement that these products should be removed from the market, and licenses applied for.

UPA asked for the help of Norman Lamb MP, who, along with Baroness Meacher, Professor David Nutt, the European Industrial Hemp Association and members, have been able to clarify and address the MHRAs concerns, who will be making a final statement, on what constitutes a “medicine” and will require a license in due course. Regulations for all other full spectrum CBD Rich Hemp extract products are now being agreed by the EIHA and the Food Standards Authority and are expected to be agreed in due course. 
  
http://jlieblingcannabis.blogspot.co.uk/2016/10/meeting-norman-lamb-mp-cbd-cannabis-and.html

For UPA to endorse any product supplier to our patients and supporters, we will expect the very highest quality standards. We have currently identified one supplier with whom we are confident meet and in fact exceed these standards, and whilst the quality guarantees they provide make the prices seem steep, we believe that the certainty of receiving a legal, quality product exactly as ordered and described is worth it.


















CannaWell are members of the European Indusrtial Hemp Association and are the exclusive European distributor for Bluebird Botanicals, America's favourite and award winning hemp company. They are a true leader and creator of the hempcannabinoid industry and are one of the world's leading producers of CO2 hemp extracts and oils. 


Bluebird Botanicals have the most stringent quality control system in the industry and intend to continue to set standards. Their products conform to the USs CGMPs (Current Good Manufacturing Practices) and only 3rd-party laboratories are used for analysis.

Unlike any other hemp products on the market, every single bottle has a full set of 3rd-party Certificates of Analysis to give customers the peace of mind they deserve. The batch number can be found on the base of your oil bottle and with it you can go online and see its verified potency and purity credentials. Each set of testing includes a separate analysis for the cannabinoid profile, potential microbial life, mold, mildew, heavy metals, and pesticides. So when you consume any of their hemp products you can now know EXACTLY what’s in it - no guesswork involved!

The hemp extract is a full spectrum CO2 oil extraction of an industrial hemp variety of Cannabis Sativa.

Learn more about Bluebird Botanicals' hemp products, quality assurance, ethics and how they guide customers in the product selection process, watch this great five minute interview with Michael Harinen: https://www.facebook.com/nocohemp/videos/1918869791733267/


Also, like ourselves, Cannawell are Brighton born and based!


Cannawell, have offered a massive and exclusive discount of 15% off their entire range, for our patients and supporters and in addition, United Patients Alliance will receive a 10% commission for every sale which will all go back into helping UPA do even more to progress Legal Access to Cannabis Therapeutics in the UK

Also, watch iSmoke's recent review of Cannawell's procduts:  



Click here to go to Cannawell's Page and enter the code UPA15 at the checkout for the discount to be applied.


Please let us know how you get on and keep an eye out for some exciting new products coming soon.



If you are a maker/distributor of similar products and wish to be considered for our Preferred Supplier list – please contact: Jon Liebling: jon@liebling.co.uk


DISCLAIMER:

United Patients Alliance Ltd. is not providing any medical advice and none should be inferred from any products, ideas, suggestions, testimonials or other information on our website.

United Patients Alliance Ltd. make no representations or warranties in relation to the health information on third-party websites. You must not rely on the information as an alternative to medical advice from your doctor or other professional healthcare provider. You should never delay or disregard medical advice, or discontinue medical treatment because of information in our materials or provided by any representative, none of which information is intended to be a substitute for medical diagnosis, advice or treatment. If you are considering making any changes to your lifestyle, diet or nutrition, you should consult with your doctor or other health care provider. These products are sold as a healthy food supplement.

Sunday, 9 April 2017

PRESS RELEASE - UNITED PATIENTS ALLIANCE - Norman Baker

United Patients Alliance Press Release - No Embargo

Norman Baker UPA Workshop - March 2017

Former UK Gov Drugs Minister announced as Patron of Medical Cannabis Org.

Since being launched in 2014 with the help of Caroline Lucas MP, United Patients Alliance have always been a charitable organisation and have worked hard to make allies and supporters within political spheres. Now on our journey to becoming a registered charity we are proud and honoured to announce former UK Government Drugs Minister and LibDem MP for Lewes, Norman Baker as our first Patron:




“I have gladly accepted the offer to become patron of the UPA. They are a well organised and sensible group. I am very clear from my time as drugs minister in the coalition government that for some people, access to cannabis is essential for their health and it is disgraceful that not only are they denied access to vital medicine but prosecuted if they access it themselves. The UPA makes a strong case for a more humane approach and I am delighted to do what I can to support them."




LibDem Parliamentary Candidate for Lewes, Kelly-Marie Blundell is very supportive:
"As a long time campaigner for access to cannabis for medicinal purposes, I'm pleased to see the United Patients Alliance go from strength to strength, and I hope with Norman Baker on board as well, we can see more action."

Clark French, Founder and Director of United Patients Alliance
“United Patients Alliance is delighted to welcome Norman as our first Patron. After our meetings with Norman at his constituency office he took Keiron Reeves and I to the home office to talk about how medical cannabis helps us. Having a former drugs Minister as a part of of the UPA is going to strengthen our organisation which in turn will help us to play a bigger part in the inevitable changes to future cannabis laws.”



Jon Liebling, Political Director:  

“We look forward to continuing our work with the support of such an influential political figure such as Norman on board and look forward to making more exiting announcements and collaborations over the coming months.”

ENDS

Editors notes:

Contact Details:
Jon Liebling – 07921589237 – jon@liebling.co.uk


--------------------------------------------------------------------------------------
Introducing United Patients Alliance
The United Patients Alliance are a rapidly growing support and campaigning community for medical cannabis patients who suffer from a range of conditions including; Cancer, Multiple Sclerosis, Fibromyalgia, Crohn’s, Anxiety, Depression, AIDS, Rheumatoid Arthritis, ME, PTSD, Epilepsy, Chronic and Neuropathic Pain all of whom have found that various types and strengths of cannabis consumed in a variety of ways has proven to be a more effective medicine than their legal and prescribed alternatives in improving their lives, reducing side effects and treating their symptoms. These patients are forced to either live in unnecessary discomfort and pain or risk dealing with criminals for their medicine and a criminal record for growing it or consuming it.

We launched in June 2014 with the support of Caroline Lucas MP and Professor David Nutt and have since gained the direct support of a number of other politicians, including former drugs minister, Norman Baker. We run Patient Perspective and Cannabis College events around the UK to give patients a forum for telling their stories and to help inform the public of the proven medical benefits whilst dispelling the myths and half-truths about its harms. We estimate that there are about 1m active and current medical cannabis consumers who would immediately benefit from a change in this dreadful situation. In terms of genuine information on medical cannabis and how best to consume it, we are the UK’s experts on cannabis as a medicine.

Friday, 18 November 2016

APPG Inquiry Report - UK Government Responds - BADLY








The All-Party Parliamentary Group for Drug Policy Reform along with United Patients Alliance and #EndOurPain submitted evidence and recommendations directly to the UK Government on September 13th 2016 from their recent initiative:


“Short Inquiry into the case for changing the categorisation of cannabis for medicinal purposes from Schedule 1 to a more appropriate Schedule”





Clark French and Jon Liebling from UPA join #EndOurPain and and APPG at Number 10!


We now have the Prime Minster Theresa May's response when Roger Godsiff, Labour MP for Birmingham, Hall Green, asked this parliamentary question:

“To ask the Secretary of State for the Home Department, if she will respond to the recommendations of the report by the All-Party Parliamentary Group for Drug Policy Reform Accessing Medicinal Cannabis: Meeting Patients’ Needs, published in September 2016.”



Sarah Newton MP, minister of state at the Home Office replied:

“The Prime Minister responded to the All-Party Parliamentary Group for Drug Policy Reform’s report ‘Accessing Medicinal Cannabis: Meeting Patients’ Needs’ on the 27 October.
Cannabis is controlled as a Class B drug under the Misuse of Drugs Act 1971 and, in its raw form, currently has no recognised medicinal benefits in the UK. It is therefore listed as a Schedule 1 drug under the Misuse of Drugs Regulations 2001
It is important that all medicines containing controlled drugs are thoroughly trialled to ensure they meet rigorous standards so that doctors and patients are sure of their efficacy and safety. To do otherwise for cannabis would amount to a circumvention of the clearly established and necessary regime for approving medicines in the UK.”

Whilst disappointing, it is hardly a surprise that this is simply a copy/paste of the same tired position the UK government has held since 1971. Clearly, neither the PM nor any of her ministers have given any consideration whatsoever to the scientific evidence presented by top UK Neurologist, Professor Mike Barnes's bar setting paper nor the output from the 623 medicinal cannabis patients from United Patients Alliance's survey.

Frankly, this just isn't good enough when it is estimated that over 1 million UK citizens suffering from a range of conditions could have their health and lives improved immediately and whilst it is difficult to argue that "It is important that all medicines containing controlled drugs are thoroughly trialled to ensure they meet rigorous standards" this has to be set against the reality that we are literally years away from this process providing any sort of progress for patients who could be helped today with legal access to cannabis in various forms. 

It is worth noting that in a recent meeting I had with Chris Tovey, Chief Operating Officer for GW Pharmaceuticals, he estimated that even Epidiolex, which has completed successful phase 3 trials and is close to approval for treatment in the US, is between 2 and 3 years away from approval in the UK. Any further cannabis based medications are, perhaps, 5 to 10 years away. Our patients cannot wait that long as has become quite clear across the globe.

With the recent progress in the US, Canada, Australia, 11 European countries and many other parts of the world, it seems inevitable that the UK government will have to look more closely and address its current unsustainable position on cannabis. However, if we want to see change happen more quickly then we must continue to increase the pressure on them and make sure that this issue remains in the public and political eye.

Of course, United Patients Alliance nor the APPG will be letting this lie. We have to make maintaining the status quo LESS comfortable for them than addressing it and plans are already in place to respond to the government including legal challenges, parliamentary motions and questions, media focuses and of course #EndOurPain will continue to bring more MPs and grow public support. More details on these plans will be forthcoming soon - Watch this space.

What can you do?



Sign up to support #EndOurPain here: http://www.endourpain.org/




Please write to your your MP, giving them the report that the APPG presented to the PM and demanding they they read it and respond to the evidence AND NOT just give the standard government line as above. Ask them to demand that the government give full consideration and a detailed response to the evidence and to each of the recommendations rather that just regurgitating their indefensible current position: Click here for how to do this

All the documents can be accessed here:

APPG Report: Accessing Medicinal Cannabis: Meeting Patient’s Needs 
Professor Mike Barnes: Cannabis: The Evidence for Medical Use 
United Patients Alliance: Medicinal Cannabis Patient Survey

We need your help and support to be the most effective we can be, so please see what you can do to help: HELP - United Patients Alliance


NOW is the time YOU can make a difference. NOW is the time to make ourselves heard. NOW is the time to support Cannabis as a Medicine.

Jon Liebling – Political Director of United Patients Alliance


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Sunday, 23 October 2016

HELP - United Patients Alliance

United Patients Alliance need YOUR Help:


We are always looking for people who can spare any time at all to help us in our goal of legal access to cannabis therapeutics in the UK.
No matter what you can do, no matter how much time you have, no matter how anonymous you want to be - There is something YOU can do to help:



#EndOurPain

Sign up to #EndOurPain and join the 37 MPs, 13 Peers, 4 celebrities and 22k supporters that have already done so. Then tell all your friends and family to do the same.

Facebook Posts/Tweets/etc - ALWAYS and Every one!

  • Follow us on Twitter: @upallianceuk
  • Like us on Facebook
  • Like all our FB posts and tweets
  • Comment on posts/tweets - this spreads the word (much wider)
  • Share posts/Retweet - spreads the word (much much wider)
  • Share posts in other groups you think are appropriate
  • LIKES – Likes are the throwaway gesture of social media. When you like the Page Update. Facebook assigns very little weight to it in the Newsfeed algorithm.
  • COMMENTS – When you comment on a Page Update, Facebook’s Newsfeed gives more weight to comments than likes. 10 TIMES BETTER!
  • SHARES – A share is the brass ring on Facebook. This is huge in terms of exposure, word-of-mouth recommendation, and credibility. Facebook assigns the most weight to shares. 100 TIMES BETTER!

Letter/MP Writing <- Click link for detailed help



  • Write to your MP
    • Highlight your own condition/situation
    • Ask for their support
    • Highlight recent APPG launch and all its information/initiatives
    • Highlight the best Scientific Evidence
    • Request support for United Patients Alliance and #EndOurPain
    • Ask for Face to Face Meeting
  • Newspapers/Magazines
    • Patient Stories (Pref Public but can be anonymous)
    • Articles (individual or groups?) for publication about the APPG Launch and #EndOurPain 
      • Be supportive, but can suggest that it does not go far enough for you/your group...because.....(GYO, Extracts, Choice/Range, etc.....)
    • "Have your say" sections of newspapers like (Metro, Sun, Mail, Telegraph, etc)
  • Published Articles
    • Share
    • Comment
    • Share your comment

Other Activities


  • Help organise UPA UK Tour and Grassroots showings (2 separate events...probably?)
    • Brighton, London, Bristol, Cardiff, Belfast, Birmingham, Sheffield, Manchester, Liverpool, Newcastle, Edinburgh, Glasgow + any others you would like to suggest
    • Ideas for improving event nights
    • Finding + booking suitable venues
    • Event Admin/Advertising/Leafletting/Posters
    • Recruiting in local area
    • Hosting event in local area
    • Become Regional Admin and recruit local help?
  • Meme Making
    • Ideas for good memes
    • Graphic Design for branded memes 
  • Video Shorts
    • Short video clips (with branding and subtitles) say 30s on why you choose cannabis for your condition - The more the merrier!
  • Blogging (Need content for brand new website due for launch soon)
    • Writing blogs about almost anything in relation to Cannabis as a Medicine
    • Writing opinion pieces about #UPA #EndOurPain, APPG Launch, Mike Barnes' report, UPA Patient Survey
      • No opinion will be censored but would strongly prefer "supportive" Eg: Brilliant and a great step forward, thanks, blah BUT: Better if, needs that, should be like this because.....etc....
  • Other website content:
    • Guides
      • GYO
      • Care Giver/Community Sharing
      • Extracts
      • Harm Reduction
      • Dosage guide
      • General consumption advice
      • Legal Advice
      • Any other ideas
  • Research for Soundbites from UK based sources
    • Politicians/Celebrities etc
    • Search Hansard/TheyWorkForYou


Be a Patient

  • We are always looking for patients willing to speak out publicly and be available for media interviews/events
  • I hate saying this, but it is just TRUE - The more emotional your story, the better. The more debilitating your illness, the better. Wheelchairs/Walking sticks all welcome! The more eloquent you are the better. The more presentable you are, the better - We put patients forward, it is (ALWAYS) the media who select who they want!
  • Particularly looking for:
    • Veterans
    • Medical Professionals
    • Elderly
    • Child
    • Mothers
    • Anyone who can demonstrate "live" the "rapid" impacts of cannabis consumption 
  • Mental Illnesses - Unique Opportunity
    • For the very first time thanks in no small way to the support of Norman Lamb MP, we have significant focus on the benefits of cannabis to mental health conditions, especially: PTSD and Anxiety
    • We need willing patients with these or related conditions also with broader/other mental health conditions who get benefit from cannabis to step forwards
NOW is the time to make a difference. NOW is the time to be heard. NOW is the time to support Cannabis as a Medicine.

Jon Liebling – Political Director of United Patients Alliance


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Tuesday, 11 October 2016

Meeting Norman Lamb MP - CBD, Cannabis and Mental Health



Meeting Norman Lamb MP - 11th October 2016



I had the pleasure of meeting with Norman Lamb MP, who stands as both one of the most proactive supporters and campaigners for Mental Health Reform, and passionate advocate for cannabis law reform both as a medicine and recreationally. He commissioned the Expert Group, Chaired by Steve Rolles,Senior Policy Analyst, Transform Drug Policy Foundation who published the most recent proposal for legal regulation of cannabis, which was submitted to parliament and can be found here: 
A regulated cannabis market for the UK


The subject for our discussion was one particularly close to my heart and mind: The Benefits of Cannabis for Mental Health Conditions, but, resulting from the recent decision by the MHRA to classify all cannabidiol (CBD) containing products as a medicine, I thought this was worth adding to the agenda.

Over the last couple of years, I have had a number of experiences of meeting MPs and I have to say that meeting Norman is different in all the good ways. He is informal, welcoming and friendly, he also has really comfortable leather sofas and I could very quickly tell that he was actively listening and taking a personal interest in what I had come to ask him, challenging fairly, asking searching and informed questions so that he understood the whole issue properly. That said, as with all MPs you meet their time is short so I got to the point:

CBD and the MHRA

Whilst supporting the need to regulate and quality control the CBD product market for the benefit of all consumers, I explained our concerns regarding the impact on many 1000s of patients' well being if legal access was restricted or indeed removed for any period of time. He listened, he grilled me, he understood and he dictated a letter to the MHRA right there and then in front of me and asking for an urgent response:


Norman Lamb's Letter to MHRA - Page 1

Norman Lamb's Letter to MHRA - Page 2


Result! Wow - That worked well, I must say. Will update you as soon as I get the Chief Executive Officer of MHRA's response!

Cannabis and Mental Health

Mental Health Conditions Effectively Managed with Cannabis
as reported by patients
©United Patients Alliance/APPG
Patient Survey 2016
We then discussed the the benefits of cannabis for many mental health conditions evidenced from Professor Mike Barnes' recent study, citing Anxiety, Depression, Sleep Disorders and PTSD along with the results of UPA's patient survey, (which we will publish shortly) finding 36% of patients effectively managing a range of mental health conditions with cannabis in various strengths and forms. 
(Conditions as reported in free text field)

Norman found these data compelling and was fascinated by the range. He noted that he had heard of its potential benefits for Anxiety and PTSD and agreed that the subject needed focus and attention.

I explained, that we spend too much time defending cannabis against exaggerated claims about its risks and so neglected the exciting benefits and that I felt, with his record in Mental Health reform, he would be in the best position to help us change this narrative. He asked, in what ways I thought he could help, so I asked whether he would help open the door to national organisations and charities on the subject. He suggested and agreed to facilitate a parliamentary round table discussion with a number of the major Mental Health Charities with whom he has a very good and long standing relationship. Another Result! (Well, as long as I can put the whole proposal together for him!!  HELP? Seriously - Help!)


Quite coincidentally (serendipitously), I happened to meet Professor David Nutt, from DrugScience on the tube on the way in and we had a very interesting conversation. Firstly, he was off to meet with representatives of the MHRA to discuss directly what their objectives and reasoning was in making their recent statement, as he feels that they might not be properly informed on the science of cannabis and CBD and was going to help them get up to speed. He has assured me, that he will be feeding back on how that went. 
In addition, he added, that there might just be some rather good news internationally on cannabis being announced shortly - He did not go into any more detail on this, but strongly suggested to keep an eye on his twitter account on Friday afternoon! :)

I have to say - Today was a good day! 


Jon Liebling – Political Director of United Patients Alliance


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